{"id":286,"date":"2016-05-23T10:11:50","date_gmt":"2016-05-23T08:11:50","guid":{"rendered":"http:\/\/mybreathmymusic.com\/?page_id=286"},"modified":"2021-03-28T22:50:10","modified_gmt":"2021-03-28T20:50:10","slug":"marleen-2","status":"publish","type":"page","link":"https:\/\/mybreathmymusic.com\/en\/marleen-2","title":{"rendered":"Hello everybody, my name is Marleen and I am 16 years old"},"content":{"rendered":"<p>I go to a school for disabled children. I am now in the fifth grade of high school. I was born with Merosin-deficient congenital musculair dystrophy. Because of this my muscles and my body are weak and floppy.<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-98\" src=\"\/wp-content\/uploads\/2016\/04\/marleen-fluit.jpg\" alt=\"marleen-fluit\" width=\"600\" height=\"896\" srcset=\"https:\/\/mybreathmymusic.com\/wp-content\/uploads\/2016\/04\/marleen-fluit.jpg 600w, https:\/\/mybreathmymusic.com\/wp-content\/uploads\/2016\/04\/marleen-fluit-201x300.jpg 201w\" sizes=\"auto, (max-width: 600px) 100vw, 600px\" \/><\/p>\n<p>I am in an electric wheelchair. I am fed through a tube, but I can eat sweets. At night I am ventilated by V- PAP. This is a mouthpiece that blows air into my lungs. I also wear splints on my hands at night. I like chatting to my friends on the internet. I also enjoy Hyves.<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-99\" src=\"\/wp-content\/uploads\/2016\/04\/marleen-hand.jpg\" alt=\"marleen-hand\" width=\"600\" height=\"896\" srcset=\"https:\/\/mybreathmymusic.com\/wp-content\/uploads\/2016\/04\/marleen-hand.jpg 600w, https:\/\/mybreathmymusic.com\/wp-content\/uploads\/2016\/04\/marleen-hand-201x300.jpg 201w\" sizes=\"auto, (max-width: 600px) 100vw, 600px\" \/><\/p>\n<p>Seven years ago I started playing the Yamaha WX5 during respiratory therapy with Ruud. It took us a long time to work out how I could best play the instrument. We tried all sorts of things. Especially how to get my hands onto the keys. It finally worked when we used a straw instead of a mouthpiece.<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-100\" src=\"\/wp-content\/uploads\/2016\/04\/marleen-met-ruud.jpg\" alt=\"marleen-met-ruud\" width=\"600\" height=\"402\" srcset=\"https:\/\/mybreathmymusic.com\/wp-content\/uploads\/2016\/04\/marleen-met-ruud.jpg 600w, https:\/\/mybreathmymusic.com\/wp-content\/uploads\/2016\/04\/marleen-met-ruud-300x201.jpg 300w\" sizes=\"auto, (max-width: 600px) 100vw, 600px\" \/><\/p>\n<p>Recently I switched to playing the Magic Flute. This is because I can play the Magic Flute a lot faster and it&#8217;s easier for me to use.<\/p>\n<p>I have already performed several times. I got nice comments. I like to make music. The Magic Flute is the only instrument I can play.<\/p>","protected":false},"excerpt":{"rendered":"<p>I go to a school for disabled children. I am now in the fifth grade of high school. I was born with Merosin-deficient congenital musculair dystrophy. Because of this my muscles and my body are weak and floppy. I am in an electric wheelchair. I am fed through a tube, but I can eat sweets. 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