{"id":281,"date":"2016-05-23T10:10:54","date_gmt":"2016-05-23T08:10:54","guid":{"rendered":"http:\/\/mybreathmymusic.com\/?page_id=281"},"modified":"2021-08-10T19:50:44","modified_gmt":"2021-08-10T17:50:44","slug":"evelien-2","status":"publish","type":"page","link":"https:\/\/mybreathmymusic.com\/en\/evelien-2","title":{"rendered":"Evelien&#8217;s Life and Loves"},"content":{"rendered":"<p><\/p>\n<h2>My name is Evelien Vrij and I am 23 years old<\/h2>\n<p>Up until I was seven years old I was healthy and like the rest of the kids in the neighborhood I just went to a regular school. Then I became ill. It started with nausea. In the morning I could not eat and had lots of hiccups. I also suffered from a lot of headaches.<\/p>\n<p>Then the doctors discovered that I had a brain tumor, and they found a hemangioma in my right cheek. I had many operations. The most radical surgery was thirteen years ago in my brainstem. It turned out that the tumor in the brainstem was also a hemangioma.<\/p>\n<p>Since this operation I have not been able to swallow properly, so I have to be fed via a tube. I have also lost the stimulus to cough, so I can not cough up my mucus. Therefore I have a cannula. By using this cannula I have overnight ventilation. During the day I am in an electric wheelchair. I have little feeling in my hands and feet because I also suffer from poly-neuropathy.<\/p>\n<p><img loading=\"lazy\" decoding=\"async\" class=\"alignnone size-full wp-image-60\" src=\"\/wp-content\/uploads\/2016\/04\/evelien.jpg\" alt=\"evelien\" width=\"600\" height=\"990\" srcset=\"https:\/\/mybreathmymusic.com\/wp-content\/uploads\/2016\/04\/evelien.jpg 600w, https:\/\/mybreathmymusic.com\/wp-content\/uploads\/2016\/04\/evelien-182x300.jpg 182w\" sizes=\"auto, (max-width: 600px) 100vw, 600px\" \/><\/p>\n<p>I started respiratory therapy when I was at high school. That&#8217;s where I first came into contact with Ruud van der Wel. I really did enjoy playing the electric saxophone, but my fingers were always slipping off the keys. Then we discovered that we could use a mirror in front of me and now I can play a lot better because I can see in the mirror where the keys are.<\/p>\n<p>I only play with my right hand because of problems with the feeling in my left hand, which means I can&#8217;t play all the notes. But there are still enough songs that I can play. When I play, Ruud plays along on the guitar and that is very nice!<\/p>\n<p>At this moment life goes quite well for me. Three mornings a week I\u00a0attend an activity center in Spijkenisse. On Monday and Friday morning I work on the computer and on Wednesday I do crafts. I very much enjoy doing the mosaics.<\/p>\n<p>I still play the saxophone. Every Sunday morning Ruud comes to my home to make some music with me. I play on the electronic sax and he plays on the guitar. When my parents had their 25th wedding anniversary I played at the celebration fest with Ruud and Karin. That was fun.<\/p>","protected":false},"excerpt":{"rendered":"<p>My name is Evelien Vrij and I am 23 years old Up until I was seven years old I was healthy and like the rest of the kids in the neighborhood I just went to a regular school. Then I became ill. It started with nausea. 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